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Top SMA News Today News

What I Heard, but Shouldn't, when I Talked with My Friend About the LA Protests
Los Angeles, California · Los Angeles

What I Heard, but Shouldn't, when I Talked with My Friend About the LA Protests

100% Left coverage: 1 sources
My very sympathetic friend (my chiropractor, in fact) said: “burning cars? Yeah, sadly, many of those people are just stupid.” He’s a Democrat and he’s not alone. It’s all about OPTICS. No matter how justified the anti-ICE theme; photos of one or two...See the Story
European Commission Approves Revolutionary First-Ever SMA Tablet Treatment: Roche's Evrysdi Changes Patient Care

European Commission Approves Revolutionary First-Ever SMA Tablet Treatment: Roche's Evrysdi Changes Patient Care

New room-temperature stable Evrysdi tablet offers greater independence for SMA patients. First non-invasive option reaches 18,000+ globally. Learn more.See the Story
Ketoacidosis not linked to diabetes diagnosed in woman with SMA type 2
Diabetes · United States

Ketoacidosis not linked to diabetes diagnosed in woman with SMA type 2

The case of a woman with spinal muscular atrophy (SMA) type 2 who developed an abnormal accumulation of molecules called ketone bodies was described in a recent case report in the U.S. Called ketoacidosis, this occurs when fats are broken down to obtain energy, resulting in ketone bodies being produced that make the blood more acidic. Ketoacidosis happens when cells don’t get enough glucose, and may cause significant health complications and mor…Read Article

In memoriam, Michael Morale: Aug. 8, 1965-June 7, 2025 – SMA News...

It is with deep sadness and heavy hearts that we announce the passing of our beloved friend, coworker, and advocate, Michael Morale. Michael died in his home in Irving, Texas, on June 7 at the age of 59. I first encountered Michael through his personal YouTube channel in 2018. The way he documented his life with SMA caught the attention of both my managers and me. His storytelling was raw, humorous, and uplifting. I had been working for Bionews,…Irving, Texas · IrvingRead Article

Most adults, teens with spinal muscular atrophy experience...

A study shows that 80% of spinal muscular atrophy patients have intermittent pain, with more than half experiencing pain at least once a week.Ulm, Germany · UlmRead Article

What it really takes to take me out to the ballgame

If you’re American and have attended a baseball game, then I imagine you’ve probably heard the song “Take Me Out to the Ball Game.” Known as the most beloved song in baseball, this classic tune has been an anthem of summer for decades. For most, it’s joyous. It’s carefree and always sets the tone for an exciting day of peanuts, Cracker Jack, and baseball. However, as someone living with spinal muscular atrophy (SMA), the logistics behind taking …Baseball · WorcesterRead Article

Phase 1 of 'Connie Care' is an opportunity to connect with others

“OK, so just pick up my arm and rest my elbow on the table right here, with my hand up toward my face. That’s right. Now do the same thing with my other arm. Yeah, like that, but move my elbows closer together. Great! Now pick up my coffee mug and put it in my hands. Wait, let me get my hands underneath it, and don’t let go until I say so! Good, I’ve got it, now you can let go.” I gave these odd step-by-step instructions to the girl sitting next…Read Article

The advantage of finding the good in everything, no matter what

As a Pollyanna, columnist Helen Baldwin has a tendency to find the good in everything — even in the midst of despair.Mississippi · MississippiRead Article

Spinraza benefits in SMA types 2, 3 seen on muscle MRIs: Study

A quantitative MRI scan, which shows detailed images of muscles, can be used to track changes seen with Spinraza (nusinersen) treatment in children with spinal muscular atrophy (SMA), according to a new study from China. SMA children started on the approved therapy at a younger age also were found to have better results, per the researchers. Overall, the findings suggest that qualitative MRI or “qMRI has the potential to be used to evaluate the …Mississippi · MississippiRead Article

Several Conn. Families Receive Customized Toy Cars to Help Their Kids with Mobility

100% Left coverage: 1 sources
On Saturday, several Connecticut families received custom toy cars to provide their kids with a chance to be independently mobile. “It means a lot,” said Stephanie Fisher whose 1-year-old son Iggy received a car. “All of the challenges that he’s had, it has really taken a village.” The program is a part of the Quinnipiac University’s participation in Go Baby...See the Story

SMA children more independent with Spinraza treatment: Study

After Spinraza (nusinersen) treatment for slightly longer than one year, school-aged children with spinal muscular atrophy (SMA) showed improved motor function and more independence in tasks involving their arms and hands, a study from China has found. These motor function improvements were linked to reduced symptoms of anxiety and depression, highlighting the impact of physical improvements on mental well-being, according to researchers. “The f…China · ChinaRead Article

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