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See all of Muscular Dystrophy News news coverage in one place. Discover how Muscular Dystrophy News’s media bias informs their coverage and compare with thousands of other news outlets.

In total, 42 have been published by Muscular Dystrophy News which Ground News has aggregated in the past 3 months.

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Top Muscular Dystrophy News News

What risk vs. reward looks like in the patient world

Mississippi · Mississippi

What risk vs. reward looks like in the patient world

The reward is that the chocolate cake tastes delicious and leaves you with a nice feeling. The risk is that you just spiked your sugar intake and may gain a few calories that take time and effort to burn off. The risk is that you may get injured, but the reward is an unbelievable rush of adrenaline when you parachute out of a perfectly good airplane by choice — if that’s your thing, of course. All of us weigh risk and reward on a daily basis and…Read Article

Digging Deeper: Mechanisms of Progression and the Case for a Dual Therapeutic Approach

Denmark · Denmark

Digging Deeper: Mechanisms of Progression and the Case for a Dual Therapeutic Approach

Panelists discuss how chronic neuroinflammation involves distinct mechanisms from acute relapses—including microglial activation, mitochondrial dysfunction, and iron deposition—necessitating dual therapeutic approaches that address relapsing and progressive disease components.See the Story

Giving thanks that my 3 sons with DMD have one another

Nebraska · Nebraska

Giving thanks that my 3 sons with DMD have one another

Summer vacation in the Midwest typically begins in mid-May, and kids return to school by mid-August. Here in Nebraska, that puts us halfway through summer break already. Like most moms, I’m feeling a mix of emotions: grief as I anticipate the end of these few precious weeks home with my children, and slight relief to have a break from sibling arguments and nonstop streams of dirty dishes from snacks snuck from the kitchen and extra wet towels th…Read Article

Accepting Help Is Difficult for Me as a Mom and a Caregiver

Late afternoon sunlight drifts into the house, brightening the blue paint on the walls. The room feels cheery and welcoming. Wicker baskets hold soft blankets, pillows cushion the couch, and dogs are sleeping on the rugs. I love walking into this room, and every room, in my home, which I have carefully curated to provide a calm and cozy haven. I have seven children: Lexi, 24; Max, 19; Chance, 18; Rowen, 16; Charlie, 14; Mary, 10; and Callie, 3. …Spain · Spain See the Story

Considering New Duchenne Muscular Dystrophy Therapies: Excon Skipping and Gene Therapy

A panelist discusses how older DMD patients might benefit from newer genetic therapies including gene therapy and exon skipping, though eligibility depends on specific mutations and absence of pre-existing immunity to AAV vectors.Mississippi · Mississippi See the Story

Ifetroban continues to show cardiac protection in Phase 2 DMD trial

Ifetroban, Cumberland Pharmaceuticals’ investigational oral therapy, improved heart function and reduced cardiac damage biomarkers in people with Duchenne muscular dystrophy (DMD), according to new trial data. These findings from the Phase 2 FIGHT DMD trial (NCT03340675) were presented at the Parent Project Muscular Dystrophy (PPMD) annual conference, held recently in Las Vegas. Long-term safety and efficacy data are expected later this year. Cu…Mississippi · Mississippi Read Article

An odd dream made me wonder how my disability affects others

I’m an early riser. As I mentioned in a past column, I like to wake up early, get dressed, make coffee, and start the day with some quiet prayer and devotion time. However, I’m also a very sound sleeper, with some help from melatonin, sleep medication, and a comfy mattress. From the time I fall asleep around 11 p.m. until about 5:30 a.m., I’m dead to the world. Some shoulder, hip, or knee pain may wake me up during those hours, but I usually man…Read Article

FDA advisory committee meeting for deramiocel in Duchenne MD set...

The U.S. Food and Drug Administration (FDA) is due to convene an advisory committee meeting next month to review the data on deramiocel, an experimental cell therapy up for approval to treat heart disease in people with Duchenne muscular dystrophy (DMD). The FDA has informed Capricor Therapeutics the meeting should happen July 30, though Capricor said that date hasn’t been confirmed. At an advisory committee meeting, the FDA gathers independent …Rockville, Maryland · Rockville Read Article

Finding balance while parenting children with DMD can be tricky

Here in the Midwest, June brings warmer temperatures. I live in Nebraska, where warmer weather is welcome after bitterly cold winters and brisk, windy springs. It’s also necessary for the crops growing in the large fields that line most of the highways. I wait all spring for the temperature to rise above 90 degrees. I love the heat and spend hours outdoors in the garden, in our backyard pool, and at baseball and softball games. My husband and I …Nebraska · Nebraska Read Article

Second patient death reported with gene therapy for muscular dystrophy

64% Center coverage: 51 sources

FDA · United States See the Story

European Commission approves treatment for Duchenne muscular dystrophy

Italfarmaco has announced that the European Commission (EC) has granted conditional marketing authorisation for Duvyzat (givinostat), a novel histone deacetylase (HDAC) inhibitor.Brussels · Brussels See the Story

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