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Top Patient Worthy News

Stock Markets · Winnipeg

US organ donation system faces scrutiny and changes after reports of disturbing near-misses

73% Center coverage: 11 sources

The U.S. is developing new safeguards for the organ transplant system after an investigation found a Kentucky group continued preparations for donation by some patients who showed signs of life.See the Story

Diabetes

Gut Bacteria Make a Molecule that Promotes Plaque Build-up in Arteries

60% Right coverage: 5 sources

A bacterially produced molecule circulates in the bloodstream and increases the risk of cardiovascular disease by hijacking immune-cell signalling. A bacterially produced molecule circulates in the bloodstream and increases the risk of cardiovascular disease by hijacking immune-cell signalling.See the Story

Carlsbad, California · Carlsbad

TRYNGOLZA® (Olezarsen) Recommended for Approval in the EU by CHMP for Familial Chylomicronemia Syndrome (FCS)

100% Left coverage: 1 sources

CARLSBAD, Calif.--(BUSINESS WIRE)--Jul 25, 2025-See the Story

Study Shows Dogs Can Detect Parkinson’s Disease by Smell – Patient Worthy

A new study has found that dogs are capable of detecting Parkinson’s disease by scent, potentially opening the door to earlier and less invasive diagnosis for the neurological disorder. According to TheHill.com, researchers discovered that trained dogs could distinguish samples from people with Parkinson’s disease from those without, simply by smelling skin swabs. Parkinson’s disease […]Parkinson's Disease Read Article

FDA Rejects Ultragenyx’s Gene Therapy for Rare Disease, Citing Manufacturing Concerns – Patient Worthy

Ultragenyx Pharmaceutical, a biotechnology company developing treatments for rare diseases, has received a setback from the U.S. Food and Drug Administration (FDA) regarding its gene therapy candidate, DTX401. According to BioPharma Dive, the therapy, designed for patients with glycogen storage disease type Ia (GSDIa), was rejected by the FDA, which issued a complete response letter […]FDA · United States Read Article

New Hope for Epidermolysis Bullosa: Tampere University Licenses Promising Drug to Theravia – Patient Worthy

A significant step forward in the treatment of a rare and painful skin condition has emerged from Finland. According to News Medical Life Sciences, Tampere University has announced the licensing of a new drug candidate for Epidermolysis Bullosa (EB) to the biopharmaceutical company Theravia. This move marks a promising advance for patients suffering from the […]Tampere · Tampere Read Article

New Study: Extending Imaging Including the Heart Upon Arrival in E.R. Helps Determine Cause of a Stroke – Patient Worthy

The study, published in the journal The Lancet Neurology and reported by MedicalXpress.com, is the first to demonstrate the urgency of extending imaging that includes the heart. This must be accomplished within minutes of arriving at the hospital. This strategy can also be used to create treatments for the prevention of future strokes. Obstruction of Blood Flow […]Read Article

A Life Touched by Fragility: Living with Epidermolysis Bullosa – Patient Worthy

Epidermolysis Bullosa (EB) is a devastating and rare genetic skin disorder often described as having “butterfly skin.” For those living with EB, even the gentlest touch can lead to painful blisters and wounds. The condition, which affects approximately one in every 20,000 births in the United States, significantly impacts the daily lives of patients and […]United States · United States Read Article

Why Does Healthcare Feel Like an Obstacle Course for Patients? – Patient Worthy

This article was originally published on Ask the Patient. Welcome to the inaugural post of “Ask the Patient.” As a cancer survivor who has experienced medical gaslighting, medical bias, negligent procedures, medical errors, unnecessary surgeries, and various other challenges at one of the nation’s leading hospitals, I have a profound understanding of the challenges that […]Healthcare · United States Read Article

Finding Joy Through Art: How One North Texas Girl Thrives Despite a Rare Skin Condition – Patient Worthy

In North Texas, a remarkable young girl named Isabella “Izzy” Esquivel has found a unique way to experience happiness and self-expression—through her art. Izzy, now ten years old, was diagnosed at birth with Epidermolysis Bullosa (EB), a rare and painful skin condition that causes her skin to blister and tear at the slightest touch. The […]Texas, United States · Texas Read Article

Heart in a Box – a new technique for heart transplantation – Patient Worthy

Instead of transplanting a heart that has been cooled and stopped, the new technique, at times referred to as “heart in a box”, creates a scenario where the heart that is donated is kept alive and imbued with oxygenated blood outside the body thus reducing the amount of time the heart is without blood. This […]Read Article

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Top Patient Worthy News

US organ donation system faces scrutiny and changes after reports of disturbing near-misses

Gut Bacteria Make a Molecule that Promotes Plaque Build-up in Arteries

TRYNGOLZA® (Olezarsen) Recommended for Approval in the EU by CHMP for Familial Chylomicronemia Syndrome (FCS)

Study Shows Dogs Can Detect Parkinson’s Disease by Smell – Patient Worthy

FDA Rejects Ultragenyx’s Gene Therapy for Rare Disease, Citing Manufacturing Concerns – Patient Worthy

New Hope for Epidermolysis Bullosa: Tampere University Licenses Promising Drug to Theravia – Patient Worthy

New Study: Extending Imaging Including the Heart Upon Arrival in E.R. Helps Determine Cause of a Stroke – Patient Worthy

A Life Touched by Fragility: Living with Epidermolysis Bullosa – Patient Worthy

Why Does Healthcare Feel Like an Obstacle Course for Patients? – Patient Worthy

Finding Joy Through Art: How One North Texas Girl Thrives Despite a Rare Skin Condition – Patient Worthy

Heart in a Box – a new technique for heart transplantation – Patient Worthy

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Study Shows Dogs Can Detect Parkinson’s Disease by Smell – Patient Worthy

FDA Rejects Ultragenyx’s Gene Therapy for Rare Disease, Citing Manufacturing Concerns – Patient Worthy

New Hope for Epidermolysis Bullosa: Tampere University Licenses Promising Drug to Theravia – Patient Worthy

New Study: Extending Imaging Including the Heart Upon Arrival in E.R. Helps Determine Cause of a Stroke – Patient Worthy

A Life Touched by Fragility: Living with Epidermolysis Bullosa – Patient Worthy

Why Does Healthcare Feel Like an Obstacle Course for Patients? – Patient Worthy

Finding Joy Through Art: How One North Texas Girl Thrives Despite a Rare Skin Condition – Patient Worthy

Heart in a Box – a new technique for heart transplantation – Patient Worthy