Why Genotype Compatibility Matters In Sickle Cell Prevention - NEWS AGENCY OF NIGERIA

Why Genotype Compatibility Matters In Sickle Cell Prevention - NEWS AGENCY OF NIGERIA

Why Genotype Compatibility matters in Sickle Cell prevention 14 total views todayBy Uche Bibilari, News Agency of Nigeria (NAN) Sickle Cell Disease (SCD) is a genetic blood disorder that arises when both parents carry the sickle cell gene, creating a 25 per cent chance of transmitting the disease to their offspring with each pregnancy. Globally, an estimated 400,000 babies are born annually with […] NEWS AGENCY OF NIGERIA

Patient Advocates Launch Initiative to Bridge Sickle Cell Gene Therapy Knowledge Gaps

When available, the educational toolkit will provide patients with sickle cell disease information on the gene therapy process, what to expect from therapy, and the importance of follow-up care.

World Sickle Cell Day 2025 - Fondazione Gianni Benzi Onlus

19 June is World Sickle Cell Day each year, providing a key opportunity to raise awareness of the impact of this genetic blood disorder, which affects millions of people worldwide, primarily those of African, Asian and Mediterranean descent. Sickle cell disease is a form of haemoglobinopathy caused by the presence of abnormal haemoglobin, which alters the shape of red blood cells, making them resemble a sickle. These misshapen cells tend to stic…

This World Sickle Cell Day, I’m grateful for UK advocacy groups

In honor of World Sickle Cell Day, held June 19, I would like to highlight some incredible U.K.-based organizations I’ve had the pleasure of working with recently. These groups are not only changing the narrative of what it means to live with sickle cell disease, but they’re also challenging stigmas and expanding perceptions about what those of us with the condition can achieve. One standout organization is Black Blood Matters UK, which leads im…

Understanding the key features of sickle cell disease and beta thalassaemia

Understand the causes, disease processes and presenting symptoms of the inherited blood disorders, sickle cell and thalassaemia.