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Stay current with all the latest and breaking news from benzifoundation.org. Compare headlines and media bias behind news outlets on stories breaking today. Overall, we’ve indexed 6 stories from benzifoundation.org over the past 3 months.

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Top benzifoundation.org News

Second public consultation on the ICH M11 Technical Specification - Fondazione Gianni Benzi Onlus

Bari, Apulia · Bari

Second public consultation on the ICH M11 Technical Specification - Fondazione Gianni Benzi Onlus

A second public consultation is now open on the Technical Specification (TS) of the ICH M11 Clinical Electronic Structured Harmonised Protocol. This aims to ensure clinical trials protocols follow a standardised format and can be electronically exchanged in a harmonised way across regulatory authorities. This is particularly useful for multi-centre and multi-national trials. The updated TS incorporates refinements based on public feedback from t…See the Story

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Rare disease day 2025 - Fondazione Gianni Benzi Onlus

Rare disease day 2025 - Fondazione Gianni Benzi Onlus

Rare Disease Day 2025 is celebrated on 28 February to raise awareness of the challenges faced by over 300 million people worldwide. Worldwide, 300 million people live with a rare disease. Fondazione Gianni Benzi has always been at the forefront of the fight against rare diseases, promoting research and innovation to develop new therapies and improve access to treatment. Our work is carried out through various networks and European projects dedic…See the Story

Analysis of paediatric post-authorization studies published in MDPI - Fondazione Gianni Benzi Onlus

Bari, Apulia · Bari

Analysis of paediatric post-authorization studies published in MDPI - Fondazione Gianni Benzi Onlus

We are excited to announce a new publication on paediatric post-authorization studies (PASs). The study, authored by Annalisa Landi, Antonella Didio, Annunziata D’Ercole, Adriana Ceci, and Fedele Bonifazi is now available in MDPI Pediatric Reports. PASs play a crucial role in the post-authorization phase of a drug. They help confirming the benefit–risk profile of drugs in real-world settings and detecting long-term or rare adverse events that ma…See the Story

GDPR and pseudonymisation: a key mechanism for data protection - Fondazione Gianni Benzi Onlus

Bari, Apulia · Bari

GDPR and pseudonymisation: a key mechanism for data protection - Fondazione Gianni Benzi Onlus

The GDPR introduces the concept of ‘pseudonymisation,’ highlighting it as a potential safeguard for ensuring compliance with data protection requirements. The EDPB guidelines clarify its definition, applicability, and benefits, explaining how it supports key GDPR obligations, including data protection principles (Article 5), data protection by design and default (Article 25), and security measures (Article 32). Additionally, the guidelines outli…See the Story