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A Life Touched by Fragility: Living with Epidermolysis Bullosa – Patient Worthy
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A Life Touched by Fragility: Living with Epidermolysis Bullosa – Patient Worthy
Epidermolysis Bullosa (EB) is a devastating and rare genetic skin disorder often described as having “butterfly skin.” For those living with EB, even the gentlest touch can lead to painful blisters and wounds. The condition, which affects approximately one in every 20,000 births in the United States, significantly impacts the daily lives of patients and […]
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