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News from fragilex

All of today’s top news stories from Fragilex. Get the full analysis behind how media bias impacts breaking news.

We’ve discovered 11 headlines written by Fragilex during the past 3 months.

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Top Fragilex News

Online 'Die-in' to Protest Labour's Cruel Cuts to DWP Benefits

Disability · London

Online 'Die-in' to Protest Labour's Cruel Cuts to DWP Benefits

100% Left coverage: 1 sources

On Friday 4 July, Autistic Inclusive Meets are launching an online ‘die-in’ in protest of Labour’s cuts to DWP disability benefits. Call To Action! Online die in, show Labour what they are causing by cutting benefits, these cuts WILL kill! What do we need from you? We need a photo of you on the floor, in bed, slumped in your car or on a chair with your eyes shut. Holding a sign if you want to with + pic.twitter.com/Y4RDISmJS5 — A.I.M – Autistic…See the Story

Shape Research, Change Lives Survey

Surrey, England · Surrey

Shape Research, Change Lives Survey

Announcement: Shape Research Change Lives Survey Now OpenWe are pleased to announce that the Shape Research Change Lives survey is now available for participation. This survey aims to gather valuable insights from individuals affected by Fragile X Syndrome (FXS), as well as their families and caregivers.The estimated time to complete the survey is approximately 10 minutes. Your input is crucial in shaping future research initiatives.To participa…Read Article

Lorraine's fundraiser for The Fragile X Society

We sincerely thank Lorraine for her remarkable efforts in raising awareness and funds for the Fragile X Society by taking part in the Women's 10K in Glasgow on the 15th June 2025. To show your support, please visit Lorraine's Just Giving page.https://www.justgiving.com/page/lorraine-wilson-1?utm_medium=FR&utm_source=CL&utm_campaign=015 Read Article

Amelia Fun Run for Fragile X

Thank you for sharing this wonderful picture of Amelia, who participated in an Easter Egg competition themed 'fun run for Fragile X/Fragile Eggs.' Amelia and her family will join the Sutton fun run on 1st June 2025, completing the 8.5-mile course around the town.Amelia, chose to raise awareness for Fragile X as she is an amazing big sister to her 2 year old brother who has Fragile X.Please check out her JustGiving page for the full story and det…England · England Read Article

Kaerus secures FDA designations for Fragile X syndrome treatment

Kaerus Bioscience has received US Food and Drug Administration’s (FDA) designations for KER-0193 to treat Fragile X syndrome (FXS).Autism · United States See the Story

Andrew's fundraiser for The Fragile X Society

In March this year, Thomas, Andrews son and Catriona's nephew was diagnosed with Fragile X Syndrome.They will participate in the Edinburgh half marathon on 25th May this year to raise funds for the Fragile X Society and increase awareness of the condition.To show your support, please visit their Just Giving page.Andrew Hart is fundraising for The Fragile X SocietyEdinburgh · Edinburgh Read Article

Dr Andrew Stanfield - Clinical Research

In March 2025, we hosted our Edinburgh conference for the second consecutive year. The event was highly successful. We extend our gratitude to all attendees and are pleased to share the afternoon presentations with you. Here is the presentation given by Dr Andrew Stanfield on Clinical Research.After finishing his basic specialist training in psychiatry, Dr Stanfield became a clinical lecturer at the University of Edinburgh. In this role, he rece…Edinburgh · Edinburgh Read Article

FXTAS - Dr Sundus Alusi

Thank you all for attending the conference and for playing such an important role in making it a truly meaningful and inspiring event. Your attendance, engagement, and shared insights helped foster an atmosphere of connection and renewed purpose. We are sincerely grateful for the time, energy, and passion you brought with you. We are delighted to share the presentation given by Dr Sundus Alusi in the afternoon of the conference. Dr Sundus Alusi …United Kingdom · United Kingdom Read Article

Easter fun in Seeley Lake

100% Center coverage: 1 sources

The Seeley Lake Lions and Leos helped facilitate Easter fun on April 20. Leos, which include students from Seeley-Swan High School, worked with the Seeley Lake Lions Club members to stuff Easter eggs for kiddos to find during a scavenger hunt and hide...United Kingdom · United Kingdom See the Story

Klay & Kruz Easter Fun

Thank you to Sarah for sending in these lovely photos of her two sons, Klay and Cruz, who are both living with Fragile X syndrome. Klay, who is 5 years old, and Cruz, who is 4 years old, each bring their own unique personalities and charm to their family. Klay and Cruz shine brightly, showcasing their individuality and the joy they bring to those around them. Sarah has brilliantly captured these treasured moments, providing us with a glimpse int…Ted Cruz · United Kingdom Read Article

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