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Boy with JEB shows distinct skin bacteria 6 years post-transplant
Germany · Germany

Boy with JEB shows distinct skin bacteria 6 years post-transplant

A boy with junctional epidermolysis bullosa (JEB) given combined gene and stem cell treatment in 2015 was found six years later to have a distinctive bacterial population in healthy, blistered, and transplanted portions of his skin, according to a new study from researchers in Germany. Compared with healthy controls, the boy’s skin microbiome — the collection of microscopic organisms that live on the skin’s surface — was out of balance. High lev…Read Article
What does home mean to my son with EB?

What does home mean to my son with EB?

I spent the last two hours at work the other day reading song lyrics, poetry, and quotes. Along with my communications team, I was attempting to brainstorm a name and tagline for the new adoption program we’re launching at our child welfare agency. I’ve also been using Google to search for synonyms, homonyms, and words that rhyme with “home” and “family.” On the way home from work, I looked at every street sign I passed and listened to songs on …Read Article

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