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United States · United StatesMore than 1.5 million Americans rely on supplemental oxygen to breathe. But right now, outdated Medicare rules and poor reimbursement are making it harder for people with chronic lung disease including Alpha-1 Antitrypsin Deficiency to get the oxygen they need. The SOAR Act (H.R. 2902 / S. 1406) will fix this by:
Restoring access to liquid and portable oxygen. Reimbursing respiratory therapists to help patients stay healthy. Protecting patients…Read Article
Tell Congress: Support the SOAR Act and Fix Supplemental Oxygen Access - Alpha-1 Foundation

Molalla · MolallaNatasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in community awareness for Alpha-1 Antitrypsin Deficiency (Alpha-1), one parade at a time. “Raising awareness means more people understand what the Alpha-1 community goes through,” Natasha shares. “It may even help someone be diagnosed and start treatment to improve their quality of life. If even one doctor or nurse sees our f…Read Article
Community Parade in Oregon Drives Awareness for Alpha-1 - Alpha-1 Foundation

Miami, Florida · MiamiThe Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th thru June 8th in Miami, Florida. This year, A1F commemorates the 30th anniversary, a milestone that commemorates and honors the legacy of those who have impacted the Alpha-1 community, especially Alphas and their families who A1F serves. In 2025, A1F shares a vision framed by four powerful pillars that define its work: Insight, Innovation, Investment, and Impact. …Read Article