Yes, I have Gaucher disease, but I don't feel 'sick'

Yes, I have Gaucher disease, but I don't feel 'sick'

As someone who is generally healthy and asymptomatic, I often feel like my Gaucher disease is tucked away in the back of my mind. Sometimes it creeps back in, reminding me, “Hey, I’m still here” — like when I get my infusion every other week or when my doctor mentions that my bone density still hasn’t improved. But aside from moments like those, I could easily forget I even have the disease. (Doesn’t everyone keep an IV pole and medical supplies…