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What decades-long diagnosis delays mean for women with von...

Summary by Hemophilia News Today
Laughable. That’s how Heidi Bentz and Lucrecia E. Choto, two women who struggled for years to receive a proper diagnosis of von Willebrand disease (VWD), described the results of a 2004 survey by the U.S. Centers for Disease Control and Prevention (CDC) of 75 women who had the disorder and were being treated at specialized hemophilia treatment centers (HTCs). The CDC found that the average time between the onset of bleeding symptoms for these wo…
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Hemophilia News Today broke the news in on Tuesday, June 3, 2025.
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