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We Caught Nevada Sharing Personal Health Data with Big Tech - The Nevada Independent
- The Markup and CalMatters revealed in 2025 that Nevada Health Link and other state health exchanges sent visitors' sensitive health data to companies like LinkedIn, Snapchat, and Google.
- This data sharing occurred when visitors answered sensitive questions about prescriptions or personal conditions, and the exchanges used trackers intended to aid marketing, though some data transfer violated privacy norms.
- Following the discovery, Nevada stopped sending data to Snapchat and LinkedIn by early May 2025 and Massachusetts ceased sending data to LinkedIn on April 28, after contact from the reporters.
- Nevada’s Russell Cook stated that trackers unintentionally collected drug names and dosages and sent them to these platforms, describing the data as "wholly irrelevant to our marketing efforts" and noting tracking was disabled pending audit.
- This incident highlights ongoing challenges in protecting health information on state-run exchanges, raising legal and ethical questions about data use and compliance with laws like HIPAA and the MHMD Act.
12 Articles
12 Articles
We caught 4 more states sharing personal health data with Big Tech – The Markup
Healthcare exchanges in Nevada, Maine, Massachusetts and Rhode Island shared users’ sensitive health data with companies like Google and LinkedIn Illustration by Gabriel Hongsdusit, CalMatters State-run health care websites around the country, meant to provide a simple way to shop for insurance, have been quietly sending visitors’ sensitive health information to Google and social media companies, The Markup and CalMatters found. The data, incl…
What Retailers Need to Know about the My Health My Data Act
Keeping pace with consumer health data privacy presents a significant, ongoing task for retailers, particularly those operating in e-commerce where business naturally crosses state and even global boundaries. Washington state’s new My Health My Data (MHMD) Act serves as a key example of this evolving regulatory environment, introducing new considerations for how companies must handle sensitive information. Importantly, this includes how essentia…
Investigation: healthcare exchanges in Nevada, Maine, Massachusetts, and Rhode Island share sensitive data with Google, LinkedIn, and Snapchat via web trackers
The Markup: Investigation: healthcare exchanges in Nevada, Maine, Massachusetts, and Rhode Island share sensitive data with Google, LinkedIn, and Snapchat via web trackers — Healthcare exchanges in Nevada, Maine, Massachusetts and Rhode Island shared users' sensitive health data with companies like Google and LinkedIn
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