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Moreno Announces that the Board Will Fund the Medicine Leo, the Sevillian Boy with Butterfly Skin, Needs.
24 Articles
24 Articles
The president of the Junta de Andalucía, Juanma Moreno, announced this Thursday that he will seek the formula to assume the cost of pioneering treatment that will mitigate the effects of...
The cost of treatment is about 100,000 euros a month. It will help to alleviate the extreme pain of people suffering from this disease.
The president of the Junta de Andalucía, Juanma Moreno, met this Thursday with Leo, a 12-year-old Sevillian child suffering from the rare disease known as butterfly skin, as well as with his mother and other families of the Debra Association, and announced that the Andalusian Health Service will facilitate the treatment of those patients who need it. Juanma Moreno has made this announcement in a care to the media upon his arrival in the Andalusi…
Its cost reaches 100,000 euros per month. You will see one by one those affected to see its viability: "we will buy it exceptionally because it is not marketed". More information: The treatment of the Butterfly Skin of Europe still does not reach Spain: "Every day of delay are new wounds"
It is the first thing Leo will do when, at last, they begin to close the wounds that he has suffered in his body for more than a decade. This young Sevillian is 12 years old and suffers from bullous epidermolysis, a rare disease commonly known as butterfly skin –because of its fragility, which causes wounds and blisters to the least touch – and for which there is already a medicine that, however, is not yet marketed in Spain. However, the Board …
The medicine, called Vyjuvek, has a cost of around €100,000 per month and will be available through SAS "in a few weeks"
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