At 48, Julien Chevrinais lives with hemophilia, a rare genetic disease that prevents blood clotting and affects nearly 6,000 people in France, mainly men. Between a body marked by hemorrhages and weekly treatment at exorbitant cost, this Deux-Sévrian tells of his daily life placed under high surveillance, but oriented towards the future.
At 48, Julien Chevrinais lives with hemophilia, a rare genetic disease that prevents blood clotting and affects nearly 6,000 people in France, mainly men. Between a body marked by hemorrhages and weekly treatment at exorbitant cost, this Deux-Sévrian tells of his daily life placed under high surveillance, but oriented towards the future.