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Student Diagnosed with Rare Disease Suffers From Lack of Care at School in Paraná, Family Reports
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Rebecca da Silva, 13, is a student at Colégio Estadual São Cristóvão in São José dos Pinhais and was diagnosed with a rare condition called Spinal Cord Atrophy (SMA). She requires specialized psychomotor support but faces difficulties in receiving it. Last year, the child was being monitored by Daiany Cristina Costa Lima, after a lawsuit was granted that forced the health plan to meet the patient's needs. Daiany accompanied Rebeca to classes unt…
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