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Caring in the Shadows: Eastbourne Mum Shines Light on 24/7 Life-Saving Role for Child with Rare Condition

Summary by Sussex Express
As Carers Week (9 - 15 June 2025) shines a national spotlight on the UK’s seven million unpaid carers, Sussex mother Victoria Sykes is speaking out about the unique and relentless demands of parenting a child with Congenital Central Hypoventilation Syndrome (CCHS) - a rare and life-threatening condition that means her child cannot breathe automatically during sleep.

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mobilemarketingmagazine.com broke the news in on Tuesday, June 3, 2025.
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