The Crucial Sickle Cell Data Collection Program Is in Jeopardy

Sickle Cell Awareness Week set for June 21 - The Troy Messenger

The Annual Sickle Cell Walk is set for 8 a.m. until noon Saturday, June 21, at Troy Parks & Recreation Outdoor Track, 601 Enzor Road. The Sickle Cell Walk is held annually to bring greater awareness to Sickle Cell and to support the research at St. Jude Children’s Research Hospital. The Sickle Cell Walk is sponsored by Sigma Gamma Rho Sorority, Iota Eta Sigma Alumnae Chapter, Troy. Darleen Hill, walk chair, invites everyone to join the Troy Chap…

The crucial Sickle Cell Data Collection program is in jeopardy

Without the Sickle Cell Data Collection program, efforts to improve access to health care for people with sickle cell disease risk falling short.

#Advancements in Gene Editing for Sickle Cell Disease and Beta Thalassemia Editas Medicine Reports Promising Results f...

Editas Medicine, a pioneering company in the field of gene editing, presented significant advancements in their proprietary targeted lipid nanoparticle (LNP) delivery system at the European Hematology Association (EHA) 2025 Congress held in June. The focus of their findings was on the in vivo editing of the HBG1/2 promoter, a critical target for treating sickle cell disease and beta thalassemia. The study reports an impressive 58% mean editing e…

Silence of sickle cell in children doesn't always mean mild disease

Sickle cell disease (SCD) is a dynamic condition that affects people differently. Its symptoms and complications are evident in some patients from childhood, while in others, it may be silent or asymptomatic. There is a common misconception that every child who lacks obvious symptoms or has an “asymptomatic” phase has a mild form of the disease. However, this is not always the case. While some patients do experience mild disease during childhood…