Rankin County family meets with FDA Commissioner over rare disease medication denial

Rankin County family meets with FDA Commissioner over rare disease medication denial

Rankin County family meets with FDA Commissioner over rare disease medication denial RICHLAND, Miss. (WLBT) – A Rankin County family’s fight to get a drug approved takes them to Washington, D.C., where they had a sit-down with the FDA Commissioner. After a peaceful demonstration with other families impacted by Barth Syndrome, they have hope for future access to a medication denied by the agency. “We were there on a wing and a prayer, and we got …