"Rare Diseases, Such as Charcot's, Don't Have Airtime. So You Have to Hit Hard"

Le Monde

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Olivier Goy, whose amyotrophic lateral sclerosis was diagnosed in 2020, is ambassador of the Brain Institute in Paris and the creator of the Summer Invincible project. He tells, in an interview with the "World", how he found the strength to "not suffer".

Faire Face - Toute l'actualité du handicap

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In this month of awareness of amyotrophic lateral sclerosis or Charcot's disease, Paris Première diffuses in clear, Saturday 14 June, Invincible Summer. In this film by Stéphanie Pillonca, released in 2023, the entrepreneur Olivier Goy delivers a powerful testimony on his fight against this neurodegenerative pathology, serious and handicaping "which wins at all times". [...] This article [Paris Première] Invincible Summer: the Carpe diem by Oliv…