Greenwood Family Talks to Senators About Life-Altering Pediatric Healthcare

Parents whose sons are losing ability to walk face ‘nightmare’ battle with NHS

Families are now facing a postcode lottery over who gets the drug givinostat, which can slow progress of Duchenne muscular dystrophy.

Parents of twins with same debilitating illness describe ‘nightmare’ NHS battle

‘It’s so close – and yet we’re stuck,’ says mother of twins with rare muscular disorder

Greenwood family talks to senators about life-altering pediatric healthcare

A Greenwood boy is on a new medication that is dramatically extending his life expectancy. He and his family are in Washington advocating for pediatric healthcare.

‘It can give children with DMD a longer life expectancy’ mother

Parents from South Dublin attended a peaceful demonstration on Wednesday asking the Government to speed up their approval of a life-changing medicine. One month ago, the European Medicines Agency granted marketing authorisation to Givinostat, which is already used in the UK and the US to delay progression of Duchenne Muscular Dystrophy (DMD). Tallaght woman Una Ennis, mother of Archie (7) has attended the protest as Archie’s battle with DMD sinc…