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Our holiday trip is a symbol of our daughter’s journey after gene...
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Our holiday trip is a symbol of our daughter’s journey after gene...
Our family is packing our suitcases once again, but this time it feels different. Instead of bracing ourselves for a long journey ahead, Judy, my wife, and I find our excitement rising each day as we prepare for a short 10-day trip back to the U.S. We’ve been looking forward to this visit for months, not only because we miss our family, but because this trip marks another milestone in our daughter’s progress. Because of Rylae-Ann’s rare disease,…
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