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Mum fears daughter's rapid decline without drug | Tech, Entertainment, Sport, Fashion, Travel News

Summary by BBC News
Chloe Aslett BBC News, Yorkshire Anna Cieslik Beatrice, 5, was diagnosed with Batten disease at the age of 3 The mum of a five-year-old girl with a terminal genetic disorder has said her daughter’s health is likely to deteriorate quickly if the NHS removes provision of the vital drug which is “keeping her going”. Two years ago, Beatrice Cieslik was diagnosed with CLN2 type Batten disease – a rare degenerative condition which causes seizures, b…

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BBC News broke the news in United Kingdom on Friday, February 21, 2025.
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