MP Calls on Province to Restore Terminal Langford Girl's Drug Funding
- On July 3, 2025, Elizabeth May, the Member of Parliament for Saanich-Gulf Islands, reached out to British Columbia’s Health Minister Josie Osborne to advocate for the continued provincial funding of Brineura medication for Charleigh Pollock.
- The funding ended on June 18 after the Canada Drug Agency decided Charleigh no longer met treatment criteria despite her family's ongoing appeals.
- Charleigh Pollock, a nine-year-old Langford girl with rare CLN2 Batten disease, had received Brineura infusions for nearly six years, slowing her neurological decline.
- May called for urgent action and comprehensive pharmacare, citing studies showing it would save lives and reduce prescription drug costs, especially for rare medications like Brineura.
- Josie Osborne is scheduled to meet Charleigh's family on July 4, with potential implications for renewed funding discussions amid calls to address larger pharmacare challenges.
15 Articles
15 Articles
LETTER: Calling on BC government to fund 9-year-old's medication for rare disease
On Thursday July 3 2025, Elizabeth May, MP for Saanich–Gulf Islands and Leader of the Green Party of Canada, sent a letter to British Columbia’s Minister of Health, the Hon. Josie Osborne, urging the provincial government to fund 9-year-old Charleigh Pollock’s Brineura medication to treat her rare disease. Read the pdf of the letter here The Honourable Josie Osborne Minister of Health Province of British Columbia July 3, 2025 Re: A Plea for Univ…
Saanich-Gulf Islands MP calls on B.C. to fund 9-year-old’s medication
Saanich-Gulf Islands MP Elizabeth May is calling on the B.C. government to restart funding for a nine-year-old Langford girl’s rare and expensive medication. Charleigh Pollock has a rare and terminal neurological disorder called Batten Disease and had been receiving a drug called Brineura, which stabilizes her condition, for the past five years at a price tag of roughly $800,000 annually. In June, the province announced it would stop funding the…
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