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Life changing drug means man living with MND could run with Sir Kevin Sinfield

The treatment has helped Sean Davies keep working and running while NICE weighs NHS access, and campaigners say it has raised more than £11 million.

A Lincolnshire man who is receiving a life-changing drug after being diagnosed with a genetic form of Motor Neurone Disease (MND) ran alongside Sir Kevin Sinfield on Tuesday (September 29) as the former rugby league legend continued his seventh fundraising challenge for MND charities.

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LincolnshireWorld broke the news on Wednesday, September 30, 2026.
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