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Legislation to support Pennsylvania rare disease community OK'd by...
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Legislation to support Pennsylvania rare disease community OK'd by...
The Pennsylvania Senate has approved legislation to extend support for patients with rare diseases, such as aromatic L-amino acid decarboxylase (AADC) deficiency, by continuing the work of the Pennsylvania Rare Disease Advisory Council (PARDAC). PARDAC was established in 2017 to help Pennsylvania residents navigate life with a rare disease by advancing research, raising awareness, and advising policymakers. A bipartisan effort sponsored by Repub…
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