US EditionJesy Nelson will 'shout to the rooftops' about baby muscle disease campaign
- Jesy Nelson launched a petition on Sunday after announcing her twin daughters Ocean Jade and Story Monroe Nelson-Foster were diagnosed with SMA1 and are unlikely to walk.
- Using her platform, Jesy Nelson, former Little Mix singer, said she feels a 'duty of care' to raise awareness and called keeping the diagnosis private 'selfish' after her seven-month-old twins' SMA1 discovery.
- The NHS has approved gene therapies for SMA, including Zolgensma in 2021, and the NHS newborn blood spot test currently screens for 10 other conditions at five days old.
- On Tuesday, Wes Streeting told ITV he backed Jesy Nelson's challenge, saying she was `right to challenge and criticise how long it takes to get a diagnosis`.
- The UK National Screening Committee is reviewing routine SMA screening, with the NHS supporting further evaluation and SMA UK warning early gene therapy treatment is time-critical for newborns.
27 Articles
27 Articles
Jesy Nelson Cries in First Interview Since Revealing 8-Month-Old Twins May Never Walk: 'I Just Want to Be Their Mom'
The Little Mix alum recently revealed that her daughters, Ocean Jade and Story Monroe, have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 Jesy Nelson/Instagram; Ken McKay/ITV/Shutterstock Jesy Nelson with her twins and her fiancé, Zion Foster (left); singer talking on 'This Morning'NEED TO KNOWJesy Nelson cried in her first interview since she shared that her 8-month-old twin daughters received a rare diagnosisNelson's daughters, Ocea…
Jesy Nelson gives update on twin daughters' heartbreaking condition: 'Could have prevented it'
Jesy Nelson held back tears on Wednesday's This Morning, where she opened up about the devastating diagnosis her twin babies have received.The former Little Mix star revealed last weekend that her eight-month-old daughters have Spinal Muscular Atrophy (SMA) type one, meaning they may never walk.Following the heartbreaking news, Ms Nelson has decided to campaign for change to help others with the progressive muscle-wasting diagnosis and potential…
Jesy Nelson's mum noticed 'something was wrong' with baby twins after health visitors said they look 'healthy'
Jesy Nelson's mum Janice is the one who raised the alarm about her twin granddaughters, the singer revealed during an emotional appearance on This Morning.
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