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Jesy Nelson says rollout of baby SMA screening is a ‘day of hope’
Hundreds of thousands of babies will be screened by heel prick as the UK National Screening Committee evaluates whether the test should become permanent.
- On Thursday, the Department of Health announced that a national newborn screening programme for spinal muscular atrophy will be rolled out across England, following a high-profile campaign by former Little Mix singer Jesy Nelson.
- Nelson previously criticized the government's initial plan, which would only cover 72% of England, describing the disparity as an unfair "postcode lottery" that left some babies without access to screening.
- Since her twin daughters were diagnosed with the condition, Jesy gathered more than 150,000 signatures on an online petition, emphasizing that SMA can limit a baby's life expectancy to two years old if untreated.
- Implementation will begin in October and continue through 2027, as Health Secretary James Murray stated the expansion ensures babies are tested from birth at laboratories across the UK.
- Seeking £5 million in investment to expand the evaluation, the government aims to deliver the rollout ahead of schedule, praised by Giles Lomax, Chief Executive Officer of SMA.
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Jesy Nelson suffers unbelievable pain as she raises twins with SMA: ‘can’t stop crying’
Jesy Nelson suffers unbelievable pain as she raises twins with SMA: ‘can’t stop crying’Jesy Nelson has revealed how her twin daughters have suffered a fresh health setback after her campaign to screen newborn babies for spinal muscular atrophy secured a major breakthrough.The...
·Karachi, Pakistan
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Coverage Details
Total News Sources23
Leaning Left6Leaning Right1Center7Last UpdatedBias Distribution50% Center
Bias Distribution
- 50% of the sources are Center
50% Center
L 43%
C 50%
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