Jesy Nelson Outraged at MPs in Emotional Video After SMA Debate in Parliament
Jesy Nelson says a limited rollout would leave 28% of babies unscreened and has urged ministers to set a timeline for full coverage.
- Former Little Mix star Jesy Nelson expressed her 'heartbreak' and 'outrage' at MPs on Monday, challenging public health minister Sharon Hodgson over the government's limited spinal muscular atrophy screening rollout.
- Prompted by a petition with over 150,000 signatures, the debate followed Nelson's advocacy driven by her personal experience with twins Story Monroe Nelson and Ocean Jade, who have SMA.
- While the government plans to introduce screening via in-screening evaluations from October 2026, the current limited rollout leaves 28 per cent of newborns unscreened, creating what Nelson termed a 'postcode lottery'.
- Planning for a large-scale NHS trial is under way, the Department of Health and Social Care said, promising screenings for hundreds of thousands of babies starting three months earlier than originally scheduled.
- Nelson remains critical of the partial rollout, calling it 'not ethical,' and continues to urge Health Secretary James Murray to provide a clear timeline for achieving 100% coverage across England.
15 Articles
15 Articles
Jesy Nelson tearfully rages at government as she slams MPs for opposing SMA testing after daughters' diagnosis
Former Little Mix singer Jesy Nelson has released a tearful seven-minute video expressing fury at MPs following Monday's Westminster Hall debate on spinal muscular atrophy screening.
The Independent
The Independent (US)Jesy Nelson hits out at health minister over SMA screening roll-out
The singer was visibly upset in the near seven-minute video after hearing the public health minister Sharon Hodgson argue against a full SMA screening roll-out.
Jesy Nelson outraged at MPs after debate on spinal muscular atrophy in parliament
Former Little Mix star has been campaigning for newborn babies to be screened for the rare condition, which causes progressive muscle wastage, after her twins, Ocean Jade and Story Monroe Nelson, were diagnosed with it
Evening Standard
Jesy Nelson outraged at MPs in emotional video after SMA debate in parliament
The singer, 35, was visibly upset in a video where she accused public health minister Sharon Hodgson of arguing against a full screening roll-out.
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