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How Jürgen Köllen and Rysbek Frey From Lingen Live with Usher Syndrome

Summary by GN-Online
By Nele WichertA shallow pusher in passing, an edge for tripping, voices blurring in the noise: for Jürgen Köllen and Rysbek Frey from Lingen, it's everyday life. Both live with Usher's syndrome. Behind the name is a rare genetic defect, a double sensory impairment. In conversation with our editorial team, they give personal insights into their life with the disease. more...
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By Nele WichertA shallow pusher in passing, an edge for tripping, voices blurring in the noise: for Jürgen Köllen and Rysbek Frey from Lingen, it's everyday life. Both live with Usher's syndrome. Behind the name is a rare genetic defect, a double sensory impairment. In conversation with our editorial team, they give personal insights into their life with the disease. more...

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GN-Online broke the news on Tuesday, October 6, 2026.
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