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Hope for Newry DMD warrior and countless others like him as ‘life-changing’ medication finally approved
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Hope for Newry DMD warrior and countless others like him as ‘life-changing’ medication finally approved
The family of a Newry boy who fought for access to a new “life-changing” medication have hailed May 8 as a “very, very good day” upon learning that that very medication has been approved for use! Jamie and Colleen Pentony – the parents of 12-year-old Alfie Pentony – have been campaigning for their son’s access to treatment since his diagnosis in 2016 with Duchenne Muscular Dystrophy. For ten years, Alfie has been managing the inherited muscle wa…
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