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Girl's Death in China Gene-Editing Trial Was Concealed, Investigation Finds

Investigators say researchers omitted the death and animal safety problems from a Nature paper, and the family paid more than $800,000 for the trial.

  • In March 2025, six-year-old "Mei" died seven days after receiving an experimental gene-editing spinal infusion at Shanghai Xinhua Hospital, a fatality that an investigation by Science and Retraction Watch revealed was never publicly disclosed.
  • The girl's parents contributed $860,000 to fund the therapy, a private arrangement that bypassed national regulatory review and allowed Xinhua Hospital to proceed without necessary oversight from China's drug regulator.
  • Lead researcher Zilong Qiu omitted the death from a Nature paper published in early 2026 detailing preclinical animal studies, with the paper also excluding the family's $860,000 financial contributions and safety concerns.
  • Shanghai Jiao Tong University School of Medicine established a special working group to investigate the incident, while local authorities previously fined Xinhua Hospital approximately $3,600 for failing to properly oversee the trial.
  • Experts compare the tragedy to Jesse Gelsinger's 1999 gene therapy death, warning that pursuing high-risk experimental treatments for nonfatal conditions risks repeating past failures as China seeks to lead in biotechnology.
Insights by Ground AI

70 Articles

Lean Right

Lluís Montoliu explained in esRadio that the clinical trials had not gone well and the parents were not informed about them.

Lean Left

The 6-year-old girl, with a non-lethal disease, had been treated with experimental gene therapy, reveals an investigation by the journal "Science".

·Paris, France
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Lean Left

The death was concealed from a scientific publication that presented favorable test results.

·Helsinki, Finland
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Lean Left

Gene therapy: A six-year-old girl died in China from a runaway immune response. The hospital authorized the treatment, while it…

·Amsterdam, Netherlands (Kingdom of the)
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Retraction Watch broke the news in New York, United States on Thursday, July 23, 2026.
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