Fundraiser to support Holywood girl with rare illness - County Down Spectator

Fundraiser to support Holywood girl with rare illness - County Down Spectator

By Julie Waters A MAJOR fundraising event is to take place in Holywood to help a six year-old with one of the world’s rarest illnesses. Little Paige Headland is one of 500 people in the world to be diagnosed with CTNNB1 Syndrome, a rare genetic condition that affects brain development, muscle tone, movement and communication. Paige, whose mum Jayne grew up in Bangor, now lives in the north east of England and has been told she is eligible for a …