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Friedreich's Ataxia: a Young Charlevoisian's Call for Access to Treatment
Summary by Le Charlevoisien
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"Since I took this treatment, my life has changed," says Sabrina Badeau-Ouimet, 24, from Baie-Saint-Paul and with Friedreich's dynaxie, a rare and degenerative neuromuscular disease. "The first patient in Canada to have access to Skyclarys (omavéloxolone), she deplores the fact that the Quebec government has refused to allow its use, despite the concrete benefits observed. For almost a year, she has been taking this medication, the only known me…
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