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Why knowing which hemophilia treatments don’t work is valuable
I groggily sat up in the hospital bed, sipped some water, and stared into the distance. Suddenly, a nurse pointed at my gown and shouted, “You’re bleeding!” But I’d taken so many painkillers that I barely reacted. This was 2003, when I had laparoscopic surgery to treat endometriosis. Doctors had approached me as a carrier of hemophilia, rather than a hemophilia patient, and the plan didn’t work. I don’t remember how the bleeding stopped, but I d…
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