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Family finds purpose after tragedy, raises money for rare epilepsy form - The Reminder

LONGMEADOW — The loss of a child is devastating, but a family in Longmeadow has found new purpose in the death of their son and brother: improving the quality of life for children with a rare form of epilepsy. Elisa Goldberg said her son, Max Goldberg, began to develop symptoms of Sunflower syndrome as a child. His eyes would roll back, and he would have a seizure when near sunlight. When he was 11 years old, she said he began rapidly waving his…
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Reminder Publications broke the news in on Wednesday, October 29, 2025.
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