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Families of Children with Duchenne Muscular Dystrophy Demand Access to New Treatments, Meeting with Kobakhidze - Civil Georgia
2 Articles
2 Articles
A father in his sixties challenges himself to cross the U.S. 4,500 km while pushing his son's wheelchair. A father in his sixties is taking on the challenge of crossing the American continent while personally pushing the wheelchair of his son, who suffers from muscular dystrophy. Their team name is Team Jaeguk. According to Team Jaeguk on the 31st, Bae Jaeguk, a 30-year-old man whose entire body is stiff due to the congenital incurable disease m…
Families of Children with Duchenne Muscular Dystrophy Demand Access to New Treatments, Meeting with Kobakhidze - Civil Georgia
Parents of children diagnosed with Duchenne muscular dystrophy (DMD), a rare genetic muscle-wasting condition, continue to demand that the state ensure free access to internationally approved, modern treatments and establish a multidisciplinary care team. The group has rallied multiple times, most recently outside the Government Administration in Tbilisi on March 28, where they requested a meeting with Georgian Dream Prime Minister Irakli Kobakh…
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