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The Deadly Saga of the Controversial Gene Therapy Elevidys

Summary by MIT Technology Review
The drug, which was designed to treat Duchenne muscular dystrophy, has been linked to the deaths of two teenage boys.

4 Articles

BloombergBloomberg
Lean Left

FDA Investigates Death of Boy Who Got Sarepta’s Gene Therapy

US regulators said they are investigating the death of an 8-year-old boy who received a gene therapy from Sarepta Therapeutics Inc.

·United States
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MIT Technology ReviewMIT Technology Review
Center

The deadly saga of the controversial gene therapy Elevidys

The drug, which was designed to treat Duchenne muscular dystrophy, has been linked to the deaths of two teenage boys.

·Boston, United States
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大纪元 Epoch Times大纪元 Epoch Times

Rare Disease Gene Therapy Breeds Death Again. Sarepta Urgently Stops Using It for Non-Ambulatory Patients | Muscular Dystrophy

U.S. pharmaceutical company Sarepta Therapeutics (Sarepta) recently announced that its gene therapy product Elevidys has caused another death after treating a second patient with non-ambulatory Duchenne muscular dystrophy (DMD), and the company has suspended the supply and trials of related drugs.

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aboutlawsuits.comaboutlawsuits.com

Elevidys Liver Failure Risks Added to FDA Black Box Warning

Federal regulators have also asked the manufacturer to stop shipping the medication, following three deaths related to the gene therapy treatment. Sarepta Therapeutics has agreed to stop shipping, and add a black box warning to its Duchenne muscular dystrophy (DMD) treatment, Elevidys, due to risks of severe liver injury risks. Elevidys (delandistrogene moxep…

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aboutlawsuits.com broke the news in on Thursday, July 24, 2025.
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