One-year-old given world-first treatment for rare skull condition
Doctors said the custom nitinol springs could reduce the need for longer operations, further surgery and blood transfusions in severe cases.
- One-Year-Old Rory Potter became the first patient to receive custom-designed nitinol springs for severe sagittal craniosynostosis at Great Ormond Street Hospital in September last year.
- Sagittal craniosynostosis causes the skull to fuse prematurely; traditional stainless-steel springs lack fine-tuned force control, prompting experts to develop 'super elastic' nitinol springs for greater flexibility.
- Rory underwent a 45-minute operation to fit the springs and stayed in the hospital for only one night before returning home to Derbyshire.
- His mother, Jo Potter, described Rory as 'happy, cheeky and full of energy' and hitting developmental milestones nine weeks after surgeons removed the springs.
- Experts at Great Ormond Street Hospital and University College London developed the technology, backed by over £1 million from GOSH Charity, aiming to reduce invasive surgery and blood transfusions.
14 Articles
14 Articles
Sky News UK
Great Yorkshire RadioOne-year-old given world-first treatment for rare skull condition
Rory Potter, from Derbyshire, was born with severe sagittal craniosynostosis - a rare condition that causes the skull to be long from front to back but narrow from side to side.
A baby boy from England has become the first baby in the world to undergo groundbreaking surgery for a rare skull condition. Little Rory Potter from Chesterfield, a “happy and lively” baby boy, was diagnosed with severe sagittal craniosynostosis shortly after he was born in April last year – a rare condition where a baby’s skull does not develop properly and their head takes on an unusual shape. Craniosynostosis causes the skull to be long fro…
'Cheeky' one-year-old baby boy with rare skull condition successfully undergoes world-first surgery
A baby boy from Derbyshire has made medical history by becoming the world's inaugural patient to undergo pioneering treatment for a severe skull abnormality using revolutionary springs crafted from a special metal alloy.Rory Potter, now aged one, received his diagnosis of severe sagittal craniosynostosis, a rare condition in which the skull bones fuse prematurely before birth, shortly following his arrival in April 2025.Medical teams at Great Or…
Evening Standard
‘Happy and cheeky’ Rory given world-first treatment for rare skull condition
One-year-old Rory Potter was diagnosed with severe sagittal craniosynostosis.
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