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Valentina and Darío, Two Small Ones United in the Struggle for a Treatment for Progressive Ossifying Fibrodysplasia
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In order to advance in the fight against Progressive Osificating Fibrodysplasia (FOP), the parents of Valentina, Tamara Romero and David Castro, have announced a new donation of 100,000 euros destined for the Valentina association. A cry to hope FOP to finance a four-year doctoral thesis on an experimental treatment. The amount is completed with 130,000 euros contributed by the lioness association By two thumbs of nothing, adding a total of 230,…
The little sherry Valentina was diagnosed after 4 months of Progressive Osificating Fibrodysplasia and her family has been doing charitable events for years to raise funds for research The strength of Valentina, more present than ever in Jere
The León child Darío and the Jerez girl Valentina join efforts to seek a treatment against the progressive ossifying fibrodysplasia (FOP) they suffer. Through the associations created by their parents, 'For two thumbs of nothing' and 'A cry of hope' allocate 230,000 euros to the first research thesis to be done in Spain to check the effects of a medicine, Tofacitinib, a treatment for rheumatoid diseases that the pediatrician of the Hospital de L…
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