Young Cuban boy battling rare condition dies after obtaining visa to get treatment in Miami

Young Cuban boy battling rare condition dies after obtaining visa to get treatment in Miami

A young boy from Cuba who was battling a medical condition died on Saturday after he and his family received a visa to travel to South Florida for treatment. Damir Ortiz was diagnosed with type 1 neurofibromatosis, a rare genetic condition that causes tumors on nerve tissue. Ortiz’s family confirmed his death to NBC6’s sister station, Telemundo 51. On March...

The ashes of the Cuban boy Damir Ortiz will remain in Miami, where his mother, Eliannis Ramírez, has applied for political asylum.

The event was confirmed by social media activists, who played a key role in managing the child’s humanitarian visa. The post The Cuban child Damir Ortiz appeared first on Cubanet dies in Miami. Source Cubanet.org

“There are no words to describe so much pain,” said activist Diasniurka Salcedo Verdecia.

On Saturday, April 5, he died at the Nicklaus Children’s Hospital in Miami Damir Ortiz, the Cuban child diagnosed with type 1 neurofibromatosis in Cuba; a genetic condition that caused the growth of tumors in the brain, spinal cord and nerves. Damir arrived to the south of Florida with a humanitarian visa, along with his mother, Eliannis Ramírez, on March 12 in an air ambulance that traveled from the United States to Cuba to transfer the under 1…