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Climb for Ali in Duncan brings awareness to rare genetic disorder

The Climb For Ali fundraiser at The Hangout Climbing Centre at 1065 Canada Ave raised $7,220, exceeding the $6,000 goal to help Ali Platt purchase a specialized wheelchair.
Ali Platt faces chronic pain and a fainting disorder due to Hyper-mobile Ehlers Danlos Syndrome, a group of 13 inherited genetic disorders that disrupts collagen production and limits her mobility.
The event's silent auction raised $1,430 from community donations, with attendees including Ali's former teachers from Ecole Duncan Elementary, demonstrating significant support for the Platts.
Hyper-Mobile EDS diagnosis takes an average of 15 years; doctors are taught that when you hear hoof-beats, think horses not zebras, leaving rare disease patients facing confusion.
Sydney hopes to establish an Ehlers Danlos Society foundation in Western Canada, while Ali aims to increase awareness, stating, "I just want people to know that this disease is real.

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