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Researcher Faces Investigation for Concealing 6-Year-Old Girl's Death in Gene-Editing Trial

Investigators say researchers hid the girl’s death and omitted her data after a severe immune reaction killed her during the trial.

  • On Monday, the Shanghai Jiao Tong University School launched an investigation into the death of Six-year-old Mei during an experimental CRISPR-based gene-editing trial led by Zilong Qiu at Xinhua Hospital.
  • Her parents paid over $800,000 for the experimental therapy targeting her Snijders Blok-Campeau condition, despite researchers ignoring warning signs that emerged during earlier animal trials.
  • Researchers concealed Mei's death by omitting her data from a study published in Nature, while Xinhua Hospital allegedly facilitated this suppression despite Qiu facing no repercussions.
  • The School stated it attaches 'great importance to the matter' and established a special working group to investigate, following reports from Science Magazine and Retraction Watch last week.
  • This incident recalls the Jiankui scandal from over a half decade ago, reflecting persistent concerns regarding transparency and biomedical ethics in China, where researchers face repeated criticism for suppressing negative trial results.
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Lean Right

The Faculty of Medicine of Jiao Tong University in Shanghai announced that it will initiate an investigation into the unknown death of a 6-year-old girl who received an experimental gene therapy from one of its neuroscientists.

·Guayaquil, Ecuador
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Lean Right

Shanghai Jiao Tong University School of Medicine has launched an investigation into the case of a 6-year-old girl who died a week after undergoing brain gene editing at an affiliated university hospital, a matter that was reportedly covered up for over a year. The international journal Science reported on the 27th (local time) that "the university promised to take 'stern measures' depending on the results of the investigation." Previously, on th…

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observatorial.com broke the news on Monday, July 27, 2026.
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