Campaigners in final push for Skyclarys approval

Hundreds protest as deadline for final decision over potentially lifesaving Friedreich's Ataxia treatment looms

A protest in Dublin city centre saw hundreds of people call for the HSE to approve the drug Skyclarys for reimbursement

Campaigners in final push for Skyclarys approval

A demonstration is being held in Dublin city centre calling on the HSE to approve reimbursement for Skyclarys, a drug used to treat Friedreich's Ataxia.

Protest in Dublin over Skyclarys reimbursment

It is a rare, inherited neurodegenerative disorder that affects the nervous system and can lead to severe movement and coordination issues, often beginning in childhood.

Govt & HSE must ensure people living with Friedreich’s Ataxia have access to Skyclarys-Greens

Govt & HSE must ensure people living with Friedreich’s Ataxia have access to Skyclarys-Greens joseph.keogh@g… Mon, 08/24/2026 - 15:54 Carolyn Moore.jpg Image The Green Party has today called on the Government and the HSE to urgently work together to find a pathway to provide access to Skyclarys for people living with Friedreich’s Ataxia.  Skyclarys, the first treatment approved in Europe for Friedreich’s Ataxia, can slow the progression of the…

Call on HSE to approve drug for Friedreich’s Ataxia | #RTÉNews #health #ireland #protest

Friedreich’s Ataxia campaigners are calling on the HSE to approve reimbursement for Skyclarys, a drug used to slow the progression of the condition. Friedreich’s Ataxia is a rare, progressive neuromuscular condition that causes nerve damage, muscle weakness and mobility loss. It is believed there are around 200 people with the condition in Ireland. Earlier this month, the HSE Drugs Group recommended that Skyclarys should not be covered by the HS…

Local campaigner says failure to fund Skyclarys will impede benefits of future treatments

Failure to fund a drug to treat the degenerative disease Friederick’s Ataxia will affect the ability of people to benefit from more advanced treatments in the future. That’s according to trainee solicitor Emily Felix in response to a recommendation from the HSE Drugs Group not to fund reimbursements for Skyclarys. On Tuesday the HSE Senior […] The post Local campaigner says failure to fund Skyclarys will impede benefits of future treatments appe…