Building muscle tone in a child who has AADC deficiency

Building muscle tone in a child who has AADC deficiency

When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and I were overwhelmed and unsure where to begin. Initially, our primary concern was survival. After she received gene therapy at 8 months old, we could finally ask the next big question: How do we help her get stronger? I half-joked about feeding her burgers every day. Judy didn’t find it very funny and reminded me that turning…