Bridging generations to share information about hemophilia

Bridging generations to share information about hemophilia

When I was diagnosed with bleeding disorders in the 1970s, the world of hemophilia looked very different. Treatments were scarce, hospital visits were frequent, and the idea of living a “normal” life seemed like a distant dream. Today, I meet children and young adults with hemophilia who’ve never known a time when factor wasn’t available, or when infusions couldn’t be done at home. Sometimes I feel like we come from two different planets — but t…