Lito Sousa Received Negative Pharmaceutical, Says Wife: 'Studies Closed'
8 Articles
8 Articles
Mila Seidl, wife of Lito Sousa, said that youtuber received a refusal from Ionis Pharmaceuticals, which would be the main chance of treatment
Diagnosed with the rare disease of Creutzfeldt-Jakob, the former aviation mechanic Lito Sousa made an appeal for access to a treatment and received the support of several celebrities such as Fatima Bernardes, Marcelo Adnet, Mariana Kupfer and Sophia Valverde. A chain of help was mounted to try to mobilize institutions to help him. In front of the air and music channel, the influencer was also known to help people overcome the fear of airplanes, …
Mila Seidl, the wife of digital influencer and former aviation mechanic Lito Sousa, posted an update on Instagram this Tuesday (August 25, 2026) about her husband's situation. According to her, the couple was unable to enroll him in an experimental clinical treatment. Lito was diagnosed with Creutzfeldt-Jakob disease, a rare, neurodegenerative, and fatal brain disease for which there is no cure. Symptoms develop within a few weeks and include ra…
Ionis Pharma states that the clinical study is not receiving new participants, but remembers that research is still very early
Mila Seidl regretted the negatives and hopes to have the time to get help
A network of support to the influencer Lito Sousa began an international mobilization to find urgent medical treatments. The initiative left the followers, after a request from Lito's wife, Mila Seidl, to contact health institutions and researchers in search of alternatives to the disease. At the same time, the family seeks diplomatic support to speed up the processes. [...]
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