New RI Law Creates Rare Disease Advisory Council

New RI law creates Rare Disease Advisory Council

EAST PROVIDENCE, R.I. (WPRI) — A bill signed into law by Governor Dan McKee on July 3 made Rhode Island the newest U.S. state with its own Rare Disease Advisory Council. State Senate President Val Lawson and Warwick mom Erin Vazquez joined Shannon Hegy on 12 Health to talk about why this council was needed and who it will benefit. According to the National Organization for Rare Disorders, families and individuals with uncommon diseases often fac…