A Seriously Ill Child Was Treated with Tailor-Made Gene Therapy. Not Long Ago, It Was Science Fiction, Says a Bioethicist

An infant suffering from a rare genetic disorder has been given gene therapy. This is the first time in history that this type of treatment has been tailored to a specific patient. “This is an example par excellence of personalized genetic medicine,” says bioethicist Peter Sýkora, founder and director of the Center for Bioethics of the Department of Philosophy and Applied Philosophy at the University of St. Cyril and Methodius in Trnava. The chi…