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A Day in the Life with Dravet: Jonas’ Unwavering Struggle
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By Laura Strempel. Today is a moderately difficult day. Jonas Flege had several seizures during the night. The 17-year-old isn't really getting going this morning; he prefers to stay in his own world. The young man from Rheine is leafing through his books at the kitchen table, which play music at the touch of a button, and eating a few halved grapes. Jonas lives with a severe form of Dravet syndrome. This is a rare form of epilepsy that causes i…
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